essential thrombocythemia

[p***@gmail.com]

I'm new to this newsgroup, as well as fairly new to the world of living
with cancer. I have essential thrombocythemia and am currently on an
experimental chemo drug through the Mayo clinic. I'm wondering if anybody
out there knows anybody with this or any really good websites with info on
it. (I also have polycythemia vera) I have the common problem of dealing
with doctors who, though very nice, have too many patients and too much
education to think their patients are intelligent enough to handle hearing
the real info on what they have. So any info on this would be greatly
appreciated. Also, anyone with any type of blood cancer who would like
to converse with me about it would be a great thing.
Thanks in advance,
Julie

[Bruce S]

I'm new to this newsgroup, as well as fairly new to the world of living
with cancer. I have essential thrombocythemia and am currently on an
experimental chemo drug through the Mayo clinic. I'm wondering if anybody
out there knows anybody with this or any really good websites with info on
it. (I also have polycythemia vera) I have the common problem of dealing
with doctors who, though very nice, have too many patients and too much
education to think their patients are intelligent enough to handle hearing
the real info on what they have. So any info on this would be greatly
appreciated. Also, anyone with any type of blood cancer who would like
to converse with me about it would be a great thing.
Thanks in advance,
Julie

I'm curious. Did you have any particular reason for posting an empty
reply to a post from 20 years ago?

[ironjustice]

I'm new to this newsgroup, as well as fairly new to the world of living
with cancer. I have essential thrombocythemia and am currently on an
experimental chemo drug through the Mayo clinic. I'm wondering if anybody
out there knows anybody with this or any really good websites with info on
it. (I also have polycythemia vera) I have the common problem of dealing
with doctors who, though very nice, have too many patients and too much
education to think their patients are intelligent enough to handle hearing
the real info on what they have. So any info on this would be greatly
appreciated. Also, anyone with any type of blood cancer who would like
to converse with me about it would be a great thing.
Thanks in advance,
Julie

"the use of PB is a definite alternative to hydroxyurea in patients with PV and ET at high risk of thrombosis"

[ironjustice]

I'm new to this newsgroup, as well as fairly new to the world of living
with cancer. I have essential thrombocythemia and am currently on an
experimental chemo drug through the Mayo clinic. I'm wondering if anybody
out there knows anybody with this or any really good websites with info on
it. (I also have polycythemia vera) I have the common problem of dealing
with doctors who, though very nice, have too many patients and too much
education to think their patients are intelligent enough to handle hearing
the real info on what they have. So any info on this would be greatly
appreciated. Also, anyone with any type of blood cancer who would like
to converse with me about it would be a great thing.
Thanks in advance,
Julie

"The increased hematocrit in the presented patients with polycythemia and thrombocythemia vera contributed to the progression of the microvascular syndrome of thrombocythemia to major occlusive ischemic events of the extremities. Standard therapy with oral anticoagulants and reduction of the hematocrit to normal by bloodletting did not affect the platelet- mediated microvascular erythromelalgic, ischemic symptoms in the patients with polycythemia vera because thrombocythemia vera persisted. Complete relief of pain and restoration of the ischemic acral circulation disturbances in patients with thrombocythemia vera or thrombocythemia associated with polycythemia vera in maintained remission by bloodletting could be obtained by long-term treatment with low-dose aspirin."